In other news we started Jake on l-dopa today. We will test his blood for Segawa's in a few weeks when he is under for his dental work and we can get a blood draw easily, but in the mean time we decided to try the Levodopa just to see if it works, given that it is fairly benign. Wouldn't that be great if it improved his motor skills?
It was crazy to see this video and watch these otherwise "typical kids" walk just like Jake
Gait dystonia from sweney on Vimeo.
At Sage's suggestion we also bought a little TV table/laptop stand to use in the bathroom. We will make a board to attach to it that has favorite toys in an attempt to get him to sit still long enough to use the toilet. He has no patience whatsoever when it comes to sitting there and waiting for something to happen. We'll try it.
Jake had a terrific time at camp last weekend. They played Capture the Flag and Jake was the star player, ensuring that his team won. Apparently the flag was attached to a bowl that was awesome for spinning, so he pretty much got a hold of it, and managed to keep it away from all of the other children. Who says these stim behaviors are anti-social?
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