I worked on the book for a bit. I need to use my bigger screen at home to get the paragraph spacing right, and see the layout.. and try to get the pagination right ( and trimmed so Squid doesn't cil me.) It is exciting to work on it. I know we don't have an agent.. that there's no flashy book tour, but I feel good knowing that the proceeds all go to SEPTAR and there are kids who might read the words on those pages and feel just a little bit better, a little less alone. God willing and the creek don't rise, the book should be available mid-November.
Jake and I went to urgent care yesterday. He does not have a broken meta-tarsal, as was feared. After a few x-rays we discovered he had only chipped a little tiny bit off of a little bitty bone. Given that one quarter of all the bones in the human body are in the feet, it is not surprising that he would break something. We are having the convergence I think of a few things:
- Jake has profound disabilities. He is unable to effectively communicate when he is in danger or injured.
- Jake does have cerebral palsy. We forget this sometimes because he is so physical, and he eats by mouth and he has no tubes or crutches, and mostly does not use a wheelchair. Most of the kids we know with CP, they are more stereotypical.
- Jake is an eight year old boy. He loves to climb and jump and explore and race around and feel the dirt between his toes.
- Jake likes being in bare feet.
I had not actually prepared for weekly urgent care/hospital visits. I did not break any bones until I was 11 I think. By his age I had chipped a tooth, and had stitches (once), but I'm pretty sure I didn't break anything until the roller skating incident. They used to have speed skate/a race at least once during each skate night. I was pretty fast, but not that fast, and was especially not in the winner category when I tripped over my own slates and landed on my right wrist. I also broke my left wrist falling off of someone's back in a game of horse (now who the hell was I ever smaller than? Perhaps that's why I fell?), and the third break, on my right arm again was from? I have no idea. I just remember that I had a wrist brace on both arms for three days during a period of time when one was healing and the other had been fractured.
Anywhoooo. I guess I forgot that Jake would get injured from normal playing too. I read a lot. I played some sports and rode my bike, but for the most part, Jake's play life is much more physical than mine ever was. I am trying to find a balance between keeping him safe and keeping him from being bored.
Jake's bus is coming soon. I must swill my coffee and head back home to pick him up from the bus. It's been a nice little vortex here, full of time, no children, many business conversations going on around me. I am well caffeinated now, and thus fortified against what this afternoon may bring. Hopefully no injuries. These co-pays are killing me.
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