Every day 5:30-8:45 Jake screams and cries. Have you heard of sundowning? It is a term most often used in describing symptoms which occur in those afflicted with Alzheimer's. Maybe that's what is going on for Jake.
I still managed to clean out the toys upstairs and get a flank steak marinated which Descartes grilled when he got home. Had I actually gotten a hold of Descartes at 4:15pm when I tried texting him I would have begged him to come home because Jake was so out of control. Then I made the kids dinner and half way through, Jake started smiling and laughing. Then he played in the back yard happily... and then he lost it again.
I am so tired. Emotionally drained really. and poor Lucy..all potty training has stopped. She is telling me she is a baby.
The only way things feel sane is to have someone come to help us every day. The fact is we just cannot afford to have that much help. Yes we get respite hours, but the reimbursement rate does not cover what an aide actually costs. We never have help over the weekend Friday through Sunday we are on our own, because **really** shouldn't we be able to take care of our own children?
I just want my arm to be healed a little more before we start cutting hours. I know this episode won't last forever, but it better end before it breaks the bank.
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