Lucile Packard Children's Hospital Find a Physician
Well, we are going to go back to the drawing board with Jake... back to genetics. It is difficult to know whether we have ruled out everything we should, and while it doesn't really matter, and it won't affect what kind of services we offer him... it will help us decide whether we have another child.
Of course it will take forever to get back into the genetics clinic. I think it took six months last time.... But Gregory Enns is great. Terrific sense of humor, smart and honest. We felt very taken care of. Of course I wish we had waited a bit... so I could have known which questions to ask.
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just notes from jennyalice
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Thoreau
I went to the woods because
I wished to live deliberately,
to front only the essential
facts of life, and see if
I could not learn what
it had to teach, and not,
when I came to die,
discover that I had not lived.
I did not wish to live
what was not life,
living is so dear;
nor did I wish
to practise resignation,
unless it was quite necessary.
I wanted to live deep
and suck out all the marrow of life,
to live so sturdily and Spartan- like
as to put to rout all that was not life,
to cut a broad swath and shave close,
to drive life into a corner,
and reduce it to its lowest terms,
and, if it proved to be mean,
why then to get the whole and
genuine meanness of it,
and publish its meanness
to the world;
or if it were sublime,
to know it by experience,
and be able to give
a true account of it
in my next excursion.
I wished to live deliberately,
to front only the essential
facts of life, and see if
I could not learn what
it had to teach, and not,
when I came to die,
discover that I had not lived.
I did not wish to live
what was not life,
living is so dear;
nor did I wish
to practise resignation,
unless it was quite necessary.
I wanted to live deep
and suck out all the marrow of life,
to live so sturdily and Spartan- like
as to put to rout all that was not life,
to cut a broad swath and shave close,
to drive life into a corner,
and reduce it to its lowest terms,
and, if it proved to be mean,
why then to get the whole and
genuine meanness of it,
and publish its meanness
to the world;
or if it were sublime,
to know it by experience,
and be able to give
a true account of it
in my next excursion.
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there are only 15 minutes during the day when I really think we are not going to make it.
then minute 16 comes and we are all going to be
okay.
email me
thejennyalice at gmail.com
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